Mine K\u00f6seler\/\u0130zmir-BHA\n
\u0130zmir\u2019de ya\u015fayan G\u00fcl\u015fah Kupan ve Ergin Kupan\u2019\u0131n k\u0131zlar\u0131\u00a0 Parla\u2019n\u0131n hastal\u0131\u011f\u0131 mutasyonlu SMA oldu\u011fu i\u00e7in ilk ba\u015fta topuk kan\u0131yla tespit edilemedi. Parla\u2019ya 2 ayl\u0131kken \u00f6zel bir kurumda yap\u0131lan SMA tarama testlerinde de sonu\u00e7 elde edilemedi. Hastal\u0131k tespit edilene kadar 4 ay s\u00fcre ge\u00e7ti. Bu s\u00fcre zarf\u0131nda Parla 6 ayl\u0131k oldu. SMA T\u0130P 1 \u00f6l\u00fcmc\u00fcl kas hastal\u0131\u011f\u0131 tan\u0131s\u0131n\u0131 hen\u00fcz koyuldu. Ge\u00e7en bu zaman kayb\u0131nda ne yaz\u0131k ki Parla\u2019n\u0131n yutma fonksiyonu, bacak hareketleri ve emme refleksi azald\u0131. \u015eu anda burnundan Ng sonda ile beslenen Parla\u2019n\u0131n tedavi \u015fans\u0131 giderek azal\u0131yor. K\u0131zlar\u0131na \u00e7are olabilmek i\u00e7in yard\u0131m kampanyas\u0131 ba\u015flatan aile tedaviye gerekli paray\u0131 toplamak i\u00e7in harekete ge\u00e7ti.Parla bebek i\u00e7in Valilik onayl\u0131 hesap a\u00e7\u0131ld\u0131. Denizbank \u0130zmir \u015fubesinde a\u00e7\u0131lan TL, Dolar ve Euro hesaplar\u0131nda yard\u0131mseverler taraf\u0131ndan yap\u0131lacak ba\u011f\u0131\u015flar Parla i\u00e7in umut olacak.\n
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Parla bebek\u00a0i\u00e7in a\u00e7\u0131lan valilik onayl\u0131 hesap bilgileri \u015f\u00f6yle:\n
Al\u0131c\u0131 ad\u0131: PARLA KUPAN
\nA\u00e7\u0131klama: PARLA
\nFaaliyet No: 23-1270\n
TL IBAN: TR170013400002316089700001
\n\u200cEURO IBAN: TR600013400002316089700003
\n\u200cDOLAR IBAN: TR870013400002316089700002\n
\u200cAVRUPA NL IBAN:
\n\u200cALICI ADI:\u00a0SMA\u00a0KIDS
\n\u200cIBAN : NL15 BUNQ 2102 1447 04
\n\u200cA\u00c7IKLAMA: PARLA
\n\u200cSWIFT KODU: BUNQNL2A\n
Minik Parla\u2019n\u0131n sosyal medya hesaplar\u0131:\u00a0\n
Instagram:sma.parla
\nFacebook:smaparla
\nTwitter: @smaparla
\nTikTok: @smaparla\n
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